LaRae is seeing Dr. Finkel at Childrens Hospital of Philadelphia. He is her Nueromuscular doctor he has been treating her muscles sinces she was 5 weeks old. He diagnose her with Arthrogryposis and gave us hope over a year ago when no one locally could tell us what was wrong with with our baby girl. So with that said. This is what we do know about Syrinx. That the pocket of fluid will get worse. So at some point it will have to be drain. We don't know when that might happen. So the doctors might just decide to watch it for awhile. However, we won't have that answer until we get in to see the surgeon. So that brings me back to Dr. Finkel we are going to see him tomorrow 12/10/2009 and hopefully he can get us into see a nuero surgeon quickly. Dr. Finkel is sweet on LaRae. It will be all over when she learns to bat her long eye lashes. So maybe he can pull some strings for us. I can only hope at this point and stay positive.
LaRae sees a Therapist at Cindy Miles in Allentown. They might be able to get LaRae a walker that will hold her up. It will help her learn how walk and give security she needs to walk.
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