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Wednesday, August 25, 2010

Swallow test results unofficially

LaRae unofficially passed her swallow study. It was comical watching the tech and doctor trying to get LaRae to eat barium cover food willing. She was not having any part of it. The test didn’t go as well as it could of. They needed her to cough on food while doing the test and that didn’t happen. They did find out that her air was being protect when she eats. That was main thing they need to know. After the test was over and they gave her cup back, she did have one of her coughing episodes. Their conclusion was that she drinks too quickly and it pools in the back of her throat it's because she can’t swallow fast enough to catch up with what her mouth is taken in. That causes her to cough. In a nutshell, she is delay in her eating habits like everything else and with time, she will catch up. LaRae just has poor table etiquette.

Now I need to get the official report from the GI doctor. LaRae should be clear for surgery I hope with in the week. We have to get the C-diff test out of the way hopefully this week and we should be good to go.

Thursday, August 12, 2010

1K walk with Luca "Lazylegz" Patuelli





Please take the 5 minutes to watch this inspirational video. Luca Patuelli has Arthrogryposis in his lower limbs. He did a 1K walk with no crutches or braces at the AMC Convention in Disney this year. It was amazing to watch. I'm proud to be able to share this with everyone who checks my blog. I hope my daughter has this much determination as the years goes on. I am so lucky to say that I have had the chance to met this amazing guy. He has a big heart and more will power then I have ever witness in anyone ever before. If he can do that then we have no excuses at all.
No Excuses, No Limits!

AMC Convention Opening Slideshow from Ani Mahan on Vimeo.