tag:blogger.com,1999:blog-48216798024531635122024-03-14T07:40:39.162-07:00MIRACLES ON MADISON STREETMiracles on Madison Streethttp://www.blogger.com/profile/02925095765326144439noreply@blogger.comBlogger75125tag:blogger.com,1999:blog-4821679802453163512.post-18919882083423937532012-11-27T10:05:00.000-08:002012-11-27T10:08:33.770-08:00LaRae at Lehigh Valley Hospital<div class="separator" style="clear: both; text-align: center;">
LaRae is a trooper. She is enduring another hospital admissions. She was admitted to Lehigh Valley Hospital Monday night Nov 26, 2012. Her pediatrician said since this was her third episode with vomiting in less then a month we had to take her to the ER. She was admitted late Monday night. The doctors aren't sure if she has a virus or not. Her sugar was really low, her blood work was off and she was dehydrated. I was hoping we would be able to go home today. It looks like she is staying another night. They are running more test. Hopefully LaRae will feel like eating soon. Her color is a little better then this morning. </div>
<div class="separator" style="clear: both; text-align: center;">
</div>
<div class="separator" style="clear: both; text-align: center;">
</div>
<div class="separator" style="clear: both; text-align: center;">
</div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi9T-rtZKzYEuedI9DtWOYz3jlF_hTMCPD9QbbFCCa_AGsUUX2i7e6Tpm7GP1otKdLYDkEKZUvecUUhQ3HD5_ZOVLBA6ilfyHVk4lZ4by9y9pm_Ag1o5fnwdCjq_aHq-hS27huVFtlFKZM/s1600/IMG_0175%5B1%5D.JPG" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi9T-rtZKzYEuedI9DtWOYz3jlF_hTMCPD9QbbFCCa_AGsUUX2i7e6Tpm7GP1otKdLYDkEKZUvecUUhQ3HD5_ZOVLBA6ilfyHVk4lZ4by9y9pm_Ag1o5fnwdCjq_aHq-hS27huVFtlFKZM/s320/IMG_0175%5B1%5D.JPG" width="239" /></a></div>
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjZYssGbODjmqowNQJQBwruxWv9fHvAcK7ZG3w8kmYt6gbpv9fWJ1jn0t0xeb7muIF8j5QCv5rkYE_vsw0xmkacG01c3DDUqMT2f77TeotcZKIrJDpbmAgciKufl1pwZ4-uJ-vZz2T_Xbc/s1600/IMG_0174%255B1%255D.JPG" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjZYssGbODjmqowNQJQBwruxWv9fHvAcK7ZG3w8kmYt6gbpv9fWJ1jn0t0xeb7muIF8j5QCv5rkYE_vsw0xmkacG01c3DDUqMT2f77TeotcZKIrJDpbmAgciKufl1pwZ4-uJ-vZz2T_Xbc/s320/IMG_0174%255B1%255D.JPG" width="239" /></a><br />
<br />
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjLkEec5sYyxGUp3etZeDvYq_V-Uh4h10AA1CCmkLU9ZvBqof3YJJquRnjcM6JDXr9d8Dxykt8rI4wHKpgN21bXUhNCtvkVm4_MTWkgpFjN3nQ4t59rdc9Hv190p8bPRyhIqGAs0UWMNNs/s1600/IMG_0173%255B1%255D.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjLkEec5sYyxGUp3etZeDvYq_V-Uh4h10AA1CCmkLU9ZvBqof3YJJquRnjcM6JDXr9d8Dxykt8rI4wHKpgN21bXUhNCtvkVm4_MTWkgpFjN3nQ4t59rdc9Hv190p8bPRyhIqGAs0UWMNNs/s320/IMG_0173%255B1%255D.JPG" width="239" /></a></div>
<div align="center">
LaRae is watching a Tinker Bell movie in the ER on an iPad.</div>
Miracles on Madison Streethttp://www.blogger.com/profile/02925095765326144439noreply@blogger.com0tag:blogger.com,1999:blog-4821679802453163512.post-55884966976244225172012-08-10T12:37:00.001-07:002012-08-10T12:38:52.558-07:00Dance<div class="separator" style="clear: both; text-align: center;">
<br /></div>
LaRae had her first dance recital. We are so proud of how far she has come. It just amazes me what she overcomes on a daily basis. Nothing ever seems to bother her. She just goes with the flow. There are four things she loves to do dancing, singing, swimming and horse back riding and she is only 3 1/2 years old. <br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg4UVPRlqSYluv1KH1bzJfWvkaukw9CzZS01-BdPftD9r9QRmfcxCANVu664GZSfhupH9XrEB6XTqInAlT5iFgczTAcBfB2TbOpLsxPD-uuFnZIHbnRQFBs9PW4OG2EPUrncxwoON9I7BQ/s1600/102_2736.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg4UVPRlqSYluv1KH1bzJfWvkaukw9CzZS01-BdPftD9r9QRmfcxCANVu664GZSfhupH9XrEB6XTqInAlT5iFgczTAcBfB2TbOpLsxPD-uuFnZIHbnRQFBs9PW4OG2EPUrncxwoON9I7BQ/s320/102_2736.JPG" width="240" /></a></div>
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiCr1o19-HuS71DYqvNX3NXtUabA9qFMnPk1T8HBhGDCIwGvA-B5BLwQtmy0dd5cimKX_DHBnCotZZrV0dSta-FuT-8wLc6W-GLpQkutgGMiafURkwv6b-z0MHWb_hv3wFrNHrRiyxj9Nk/s1600/102_2749.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiCr1o19-HuS71DYqvNX3NXtUabA9qFMnPk1T8HBhGDCIwGvA-B5BLwQtmy0dd5cimKX_DHBnCotZZrV0dSta-FuT-8wLc6W-GLpQkutgGMiafURkwv6b-z0MHWb_hv3wFrNHrRiyxj9Nk/s320/102_2749.JPG" width="320" /></a></div>
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjftq9iR01gmucf_QNhFc_eXm0HW1k7howo3JCUReO9f4R4dV86CXKVdGq_i-2kq1dMEl_J2wVPnQsbuF015tK-noklehRkGuXUwl8KCKL-7gAhx0x75MWC_8uvq-I9znbA7lpXV8_YhpE/s1600/102_2755.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjftq9iR01gmucf_QNhFc_eXm0HW1k7howo3JCUReO9f4R4dV86CXKVdGq_i-2kq1dMEl_J2wVPnQsbuF015tK-noklehRkGuXUwl8KCKL-7gAhx0x75MWC_8uvq-I9znbA7lpXV8_YhpE/s320/102_2755.JPG" width="240" /></a></div>
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhlmZMJXkvTfeX_7B9iJhl1Bx4O03BivZWa0x8w0FmKkA-j94YlUu_TN5XJi2AVmBTrb7WWdmJ46J2y4LEqce-ce5v_HH70-Y-DhQ5r-LWB2df5TJIPREXYpQVISjDnGzeRRYOiswy9hYg/s1600/102_2750.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhlmZMJXkvTfeX_7B9iJhl1Bx4O03BivZWa0x8w0FmKkA-j94YlUu_TN5XJi2AVmBTrb7WWdmJ46J2y4LEqce-ce5v_HH70-Y-DhQ5r-LWB2df5TJIPREXYpQVISjDnGzeRRYOiswy9hYg/s320/102_2750.JPG" width="240" /></a></div>
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgYCYdyuRarhQsrPe2yvZOThm6EsSUXR8e4KVmEnFg6sn-jEfKLsGOU7w9GIWCFtUQdvhTCCoK9JpjvW3gv2ah7Djycy5f0tOuW6s4jr6nkM9NQzNcb_TReRExtOw8XJSSHqYVK3gvntjE/s1600/102_2752.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgYCYdyuRarhQsrPe2yvZOThm6EsSUXR8e4KVmEnFg6sn-jEfKLsGOU7w9GIWCFtUQdvhTCCoK9JpjvW3gv2ah7Djycy5f0tOuW6s4jr6nkM9NQzNcb_TReRExtOw8XJSSHqYVK3gvntjE/s320/102_2752.JPG" width="240" /></a></div>
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEizuFM-U6arVwiSrzNhyphenhyphen-hvBGzDW-0AfTlIlFRp3AmCkqpe8c4hscXLqRbaitNhRhlzn0dnYEUa4aqYM_AiwKIv03sYs6yJ679iqA7tfL27MX2GaaW8AaQA9kFlHCiY9Blo8myNlYinoU8/s1600/dance.png" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEizuFM-U6arVwiSrzNhyphenhyphen-hvBGzDW-0AfTlIlFRp3AmCkqpe8c4hscXLqRbaitNhRhlzn0dnYEUa4aqYM_AiwKIv03sYs6yJ679iqA7tfL27MX2GaaW8AaQA9kFlHCiY9Blo8myNlYinoU8/s1600/dance.png" /></a></div>
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiwEkRhwYKctwk7f7rU2RroJBiOInhXPQikwJmIVJS_jsU8psSP6nILupz5VujKSAn7spzFJ7szdApd5hOeH4-eIsJSOSwi4GF-_LkzkNp79Jtlu4ih0WRQu2Kg3qQ5qZnwUz0hyphenhyphenXp7fCE/s1600/untitled.png" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiwEkRhwYKctwk7f7rU2RroJBiOInhXPQikwJmIVJS_jsU8psSP6nILupz5VujKSAn7spzFJ7szdApd5hOeH4-eIsJSOSwi4GF-_LkzkNp79Jtlu4ih0WRQu2Kg3qQ5qZnwUz0hyphenhyphenXp7fCE/s1600/untitled.png" /></a></div>
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiGTRxVzp1imnipnJe3jnAj1bwUurFPvS_AT6qq51qEczaZApJ6reQU7Dw4u1vLtkUSRNNwt5k5aY5TzFEQJKN7_Tog3-Th47unJ7mJ1uLchwmarrUWO1xxDne5zvnG3_ByahSDa0oMwjg/s1600/untitled2.png" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiGTRxVzp1imnipnJe3jnAj1bwUurFPvS_AT6qq51qEczaZApJ6reQU7Dw4u1vLtkUSRNNwt5k5aY5TzFEQJKN7_Tog3-Th47unJ7mJ1uLchwmarrUWO1xxDne5zvnG3_ByahSDa0oMwjg/s1600/untitled2.png" /></a></div>
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh9fcioYcg4tphVPetWuSkndJxZm2D8CIJnuYmwXvB7Mhm3zIK8h4_srngD7Cde6WKpSPxdpy-nW7rW4ouSxw2UPWNxKOhnFwwLw8lRXFx-hq6Fo6Y_iOoRDop6mgA7oFuBKMTVeT9n7Ro/s1600/102_2735.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh9fcioYcg4tphVPetWuSkndJxZm2D8CIJnuYmwXvB7Mhm3zIK8h4_srngD7Cde6WKpSPxdpy-nW7rW4ouSxw2UPWNxKOhnFwwLw8lRXFx-hq6Fo6Y_iOoRDop6mgA7oFuBKMTVeT9n7Ro/s320/102_2735.JPG" width="240" /></a></div>
<br />Miracles on Madison Streethttp://www.blogger.com/profile/02925095765326144439noreply@blogger.com2tag:blogger.com,1999:blog-4821679802453163512.post-50861652968631976832011-03-12T04:34:00.000-08:002011-03-13T05:35:09.644-07:00LaRae's bedtime story<div style="text-align: center;"><em>"On the night you were born,</em></div><div style="text-align: center;"><em>the moon smiled with such wonder</em></div><div style="text-align: center;"><em>that the stars peeked in to see you</em></div><div style="text-align: center;"><em>and tonight wind whispered,</em></div><div style="text-align: center;"><em>"Life will never be the same. "</em></div><div style="text-align: center;"><em><br />
</em></div><div style="text-align: center;"><em>Because there had never been anyone like you....</em></div><div style="text-align: center;"><em>ever in the world.</em></div><div style="text-align: center;"><em><br />
</em></div><div style="text-align: center;"><em>So enchanted with you where the wind and the rain </em></div><div style="text-align: center;"><em>that they whispered the sound of your wonderful name.</em></div><div style="text-align: center;"><em><br />
</em></div><div style="text-align: center;"><em>It sailed through the farmland</em></div><div style="text-align: center;"><em>high on the breeze...</em></div><div style="text-align: center;"><em><br />
</em></div><div style="text-align: center;"><em>Over the ocean...</em></div><div style="text-align: center;"><em><br />
</em></div><div style="text-align: center;"><em>And through the trees...</em></div><div style="text-align: center;"><em><br />
</em></div><div style="text-align: center;"><em>Until everyone heard it</em></div><div style="text-align: center;"><em>and everyone knew</em></div><div style="text-align: center;"><em>of the one and only ever you.</em></div><div style="text-align: center;"><em><br />
</em></div><div style="text-align: center;"><em>Not once had their being such eyes,</em></div><div style="text-align: center;"><em>such a nose,</em></div><div style="text-align: center;"><em>such silly, wiggly, wonderful toes.</em></div><div style="text-align: center;"><em><br />
</em></div><div style="text-align: center;"><em>When the polar bears heard,</em></div><div style="text-align: center;"><em>they dance until dawn.</em></div><div style="text-align: center;"><em><br />
</em></div><div style="text-align: center;"><em>From faraway places,</em></div><div style="text-align: center;"><em>the geese flew home.</em></div><div style="text-align: center;"><em><br />
</em></div><div style="text-align: center;"><em>The moon stayed up until</em></div><div style="text-align: center;"><em>morning next day.</em><br />
<em><br />
</em><br />
<em>And none of the ladybugs flew away.</em></div><div style="text-align: center;"><em><br />
</em></div><div style="text-align: center;"><em>So whenever you doubt just how special you are</em></div><div style="text-align: center;"><em>and you wonder who loves you, how much and how far,</em></div><div style="text-align: center;"><em>listen for geese honking high in the sky.</em></div><div style="text-align: center;"><em>(They're singing a song to remember you by.)</em></div><div style="text-align: center;"><em><br />
</em></div><div style="text-align: center;"><em>Or notice that bears asleep at the zoo.</em></div><div style="text-align: center;"><em>(It's because they've been dancing all night for you!)</em></div><div style="text-align: center;"><em><br />
</em></div><div style="text-align: center;"><em>Or drift off to sleep to the sound of the wind.</em></div><div style="text-align: center;"><em>(Listen closely... It's whispering your name again!)</em></div><div style="text-align: center;"><em><br />
</em></div><div style="text-align: center;"><em>If the moon stays up until morning one day,</em></div><div style="text-align: center;"><em>or a ladybug lands and decides to stay,</em></div><div style="text-align: center;"><em>or a little bird sits at your window awhile,</em></div><div style="text-align: center;"><em>it's because they're all hoping to see you smile...</em></div><div style="text-align: center;"><em><br />
</em></div><div style="text-align: center;"><em>For never before in story or rhyme</em></div><div style="text-align: center;"><em>(not even once upon a time)</em></div><div style="text-align: center;"><em>has the world ever known a you, my friend,</em></div><div style="text-align: center;"><em>and it never will, not ever again...</em></div><div style="text-align: center;"><em><br />
</em></div><div style="text-align: center;"><em>Heaven blew every trumpet</em></div><div style="text-align: center;"><em>and played every horn</em></div><div style="text-align: center;"><em>on the wonderful, marvelous</em></div><div style="text-align: center;"><em>night you were born."</em></div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhAgrjEg-7uytiVfOvgYhyZ8Nhov4ImlRCYyBAF3w_9oaIUEo0VG9vfC2r4J2okq9FPTqgHIbDd4hjZVt2cuq7vUGFpEmqUTLH39na6d6PtYFqQ5d9NfgW3bwNbw0n9IerrOyaOea3cz-M/s1600/night.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" q6="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhAgrjEg-7uytiVfOvgYhyZ8Nhov4ImlRCYyBAF3w_9oaIUEo0VG9vfC2r4J2okq9FPTqgHIbDd4hjZVt2cuq7vUGFpEmqUTLH39na6d6PtYFqQ5d9NfgW3bwNbw0n9IerrOyaOea3cz-M/s1600/night.jpg" /></a></div>by Nancy Tillman <a href="http://www.nancytillman.com/books/night/">www.nancytillman.com/books/night/</a><br />
<br />
I got this book so LaRae could hear me read to her while I was in the Hospital. I feel this book was written especially for my miracles baby. I know it wasn't. This book expresses the way I feel about her the night she was born perfectly. So I thought I would share this cute story and of course a picture of her.<br />
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjCX3XIO7YugaaiFUxOxUWI_-VsSrEb67JikvoASOziQmYRvPWfnKpEJzwpJj3O6K0is02-0EJzXhEa-yNShqFv1gR7bQuRiFliIDxmEXwls0QA6w5FC-i0bxpEcyoMqFOi2-p7-OndDH8/s1600/100_0150.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="288" q6="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjCX3XIO7YugaaiFUxOxUWI_-VsSrEb67JikvoASOziQmYRvPWfnKpEJzwpJj3O6K0is02-0EJzXhEa-yNShqFv1gR7bQuRiFliIDxmEXwls0QA6w5FC-i0bxpEcyoMqFOi2-p7-OndDH8/s320/100_0150.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">LaRae 5 minutes after being born.</td></tr>
</tbody></table>Miracles on Madison Streethttp://www.blogger.com/profile/02925095765326144439noreply@blogger.com1tag:blogger.com,1999:blog-4821679802453163512.post-79122525399239937572011-03-03T12:57:00.000-08:002011-03-03T13:02:47.493-08:00LaRae's Shriner's Appointment with Dr. Kozin for Arthrogryposis/Amyoplasis<div align="center" class="MsoNormal" style="margin: 0in 0in 10pt; text-align: center;"><b style="mso-bidi-font-weight: normal;"><span style="color: #ff0066; font-size: 36pt; line-height: 115%; mso-bevel-capbot-bevelstyle: 0; mso-bevel-capbot-dpiheight: 0pt; mso-bevel-capbot-dpiwidth: 0pt; mso-bevel-captop-bevelstyle: 2; mso-bevel-captop-dpiheight: 2.5pt; mso-bevel-captop-dpiwidth: 3.0pt; mso-bevel-colorcontour-alpha: 100.0%; mso-bevel-colorcontour-color: #A94543; mso-bevel-colorcontour-themecolor: accent2; mso-bevel-dpicontour: .7pt; mso-bevel-dpiextrusion: 2.0pt; mso-bevel-material: 8; mso-effects-shadow-align: topleft; mso-effects-shadow-alpha: 38.0%; mso-effects-shadow-angledirection: 5460000; mso-effects-shadow-anglekx: 0; mso-effects-shadow-angleky: 0; mso-effects-shadow-color: black; mso-effects-shadow-dpidistance: 3.071pt; mso-effects-shadow-dpiradius: 4.0pt; mso-effects-shadow-pctsx: 100.0%; mso-effects-shadow-pctsy: 100.0%; mso-no-proof: yes; mso-style-textoutline-outlinestyle-align: center; mso-style-textoutline-outlinestyle-compound: simple; mso-style-textoutline-outlinestyle-dash: solid; mso-style-textoutline-outlinestyle-dpiwidth: .9pt; mso-style-textoutline-outlinestyle-join: round; mso-style-textoutline-outlinestyle-linecap: flat; mso-style-textoutline-outlinestyle-pctmiterlimit: 0%; mso-style-textoutline-type: none;"><span style="font-family: Calibri;">LaRae</span></span></b></div><br />
LaRae saw Dr. Kozin yesterday at Shriner’s Hospital for Children’s. It was a good appointment. He said she is doing very well. Her left arm is at 90 degrees and the right is at 0 to 35 degrees. It’s what I would call floppy. He had another word for it however, I don’t remember the terminology. He is not worry about her legs either he really didn’t have a good answer to why. Just that with Arthrogryposis growing does play a big roll with development, we will have to wait and see. I do know that her P/T will like that answer at all. <br />
<br />
We don’t need to go back until my health is doing better. He did offer to take LaRae for a while if that would help us out. I’m not sure what Dr. Kozin would have said if I would have taken him up on his offer. It is really nice knowing that he cares that much about LaRae to even say that.<br />
<br />
I think he was a little sad that LaRae didn’t crawl up into his lap this time. Since her spine surgery she not as quick to go near doctors I hope over time she gets over her fear. Good thing Dr. Kozin doesn’t have a white doctors’ coat then it would have been all over for him. At the end of the appointment he did coax her up into his lap with toys so I could get this picture. <br />
<br />
<br />
<br />
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj3IMm1wjKy_dAsMeBYPS_sD9-ULSvUoX7qMgR4Q20DIbxQ0brKrM_uU3BKKp3ncr05_P0ygrM0bhCm5e34wjZIwahPRApT57XW1t1RLDl2a1wYMuTXU5mt_rt9tSjfFG6soHTHQ_Rl57E/s1600/102_2470.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" l6="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj3IMm1wjKy_dAsMeBYPS_sD9-ULSvUoX7qMgR4Q20DIbxQ0brKrM_uU3BKKp3ncr05_P0ygrM0bhCm5e34wjZIwahPRApT57XW1t1RLDl2a1wYMuTXU5mt_rt9tSjfFG6soHTHQ_Rl57E/s320/102_2470.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">LaRae and Dr. Kozin one of her favorite doctor's and mom's too. He's Great.</td></tr>
</tbody></table>Miracles on Madison Streethttp://www.blogger.com/profile/02925095765326144439noreply@blogger.com0tag:blogger.com,1999:blog-4821679802453163512.post-15272664516324474782011-02-24T07:53:00.000-08:002011-02-24T07:53:56.390-08:00LaRae's medical update.LaRae saw her physical therapist Rachel last Thursday. This was LaRae's first appointment since her tether cord release in January. Rachel had noticed that the LaRae's left leg is getting worse. So we have decided that LaRae needs to have a second opinion due to how bad the left leg is at this time. We were told that LaRae could get worse before she got better but apparently this is a lot worse than what we should've expected it. Her physical therapist doesn't know if it's a joint problem in the hip or if it's a neurological problem with the brain so we definitely have to have it addressed sooner than later. <br />
<br />
The good thing is LaRae has an appointment with Dr. Kozin of Wednesday, February 2 at Shriners. So I am hoping that we will be able to get in to see the lower extremity doctor and the neurosurgeon that is there so we can figure out why LaRae's legs are not improving.<br />
<br />
I'm really hoping that this turns out to be nothing and that LaRae just needs more time to heal. My heart wants to believed one thing and I want to stay positive and not think the worst all the time. Then I see her legs I know that something is really wrong and that scares me because I don't want her to go through more surgeries. It really was the hardest thing I had to do was to allow the doctors to take her away and to entrust them with my little girl. To not know if she's going to be okay. Now I feel like we are right back where we started from and I have to trust them again.<br />
<br />
So if you could say a prayer for my amazing little girl that she keeps her determination not to let anything get in her way from what she wants to do I would really appreciate. <br />
<br />
<br />
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi1wUpObF9oJcHUG_jrWqcuZDisLjgTqt1NsNlhfrub-rNgZNfbyOvvOIcOUqhaaQ5VsKhJYkcE0FsqfWs7A_KzLWDhHjcjZwv55b5_-0OF0g0_AzNubFIw2uOnmjY3vekMWT7HsKWdU-I/s1600/102_2448.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" l6="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi1wUpObF9oJcHUG_jrWqcuZDisLjgTqt1NsNlhfrub-rNgZNfbyOvvOIcOUqhaaQ5VsKhJYkcE0FsqfWs7A_KzLWDhHjcjZwv55b5_-0OF0g0_AzNubFIw2uOnmjY3vekMWT7HsKWdU-I/s320/102_2448.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">LaRae on Valentine's Day</td></tr>
</tbody></table><br />
<br />
<br />
<br />
<br />
<br />
<br />
<br />
. <br />
Miracles on Madison Streethttp://www.blogger.com/profile/02925095765326144439noreply@blogger.com0tag:blogger.com,1999:blog-4821679802453163512.post-52183685635623605752011-02-08T13:00:00.000-08:002011-02-08T13:00:34.095-08:00LaRae's Post-Op Appt with Dri CampbellLaRae finally made it her Post-Op appointment with Dr.Campbell. Quintin had the luxury of taken her to the appointment since I was in the hospital. It was the first time he did it all by himself and I have to say he did an excellent job.<br />
<br />
Anyway, Dr.Campbell said "she is doing OK considering nothing has really changed and we won't see any improvements for 3 months if there is any improvements." We have to just wait and see what her body does. The only things that has us concern is she is falling more for no reason. He just said the same thing, it will take time he hopes. We can now start Physical Therapy again. This will tell us if things are improving or getting worse. I really hope the surgery fix the problem and the fluid in the spine goes away. I guess I am just going to have to be patient.<br />
<br />
She goes back to Dr. Campbell in May and he mention another MRI in 3 months. I guess that's where we are with she tethered cord and Syrinx.Miracles on Madison Streethttp://www.blogger.com/profile/02925095765326144439noreply@blogger.com0tag:blogger.com,1999:blog-4821679802453163512.post-38176629546626336672011-01-27T10:57:00.000-08:002011-01-27T10:57:54.119-08:00LaRae's Post-Op Appt CancelledWe had to cancelled LaRae's Post-Op appt because of the snow storm. It stinks because something isn't right with her incision and I am not sure what it is. I hope I can get her back down next week. I don' think that's going to happen because she already has an appt at Shriner's with Dr. Kozin.<br />
<br />
I wish I had good news to tell everyone. She's not back to P/T yet. I am trying not worry about anything but, she is starting to fall more now for no reason. I thought I was just imaging things, however, it's been getting worse over the last week and she's tripping over nothing, she just falling for no reason. Now I have to keep track of how she falling, when, and how many times a day. This is her new status for now. Miracles on Madison Streethttp://www.blogger.com/profile/02925095765326144439noreply@blogger.com0tag:blogger.com,1999:blog-4821679802453163512.post-15493516046794891202011-01-21T10:00:00.000-08:002011-01-21T17:22:43.873-08:00Climbing the Tallest MountainI hope no one takes anything I write in this personally. This is something I need to do to move forward because these are very personal feelings for me. My hope is by expressing them; it will help me to become stronger for my family. LaRae’s medical problems are beginning to becoming too overwhelming, and I need to let them out. I think that I have finally come to my breaking point with all LaRae’s medical problems. Everyone keeps telling me to be positive, to pray, get her a blessing, to stop worry about it and it will all work, that she in good hands, doctors make it sound worse then what it is and the list goes on. <br />
<br />
Now I find myself facing my own medical problems that have me so overwhelmed. I don’t know how I can possible handle both. It was bad enough trying to be strong enough for her do I have enough strength for the both of us. Does Heavenly Father really think I am this strong? I seem to find myself in tears all the time I just don’t know if I can. I find myself asking, why does my life have to be so hard. Why do I always seem to have to find some kind of amazing strength to pull myself threw these trials?<br />
<br />
I know everyone is trying to help me. I really do appreciate all the word of encouragement and the prayers. I cannot help the way I feel inside. I am not feeling sorry for myself nothing, like that. I do not want to feel like this. I want to be strong for her, for my other kid and my husband; however, right now I feel like someone has thrown me under a train. I just want to climb the tallest mountain and scream from it as loud I could.<br />
<br />
<br />
<div style="text-align: center;"><strong><em><span style="color: #4c1130; font-family: Georgia, "Times New Roman", serif; font-size: large;">I have never climbed a mountain, but I can imagine that, with each step, my chest is burning. My legs feel like they cannot take another step. I cannot breathe because the air is too thin this high up. I feel exhausted from the climb, and when I think that I cannot take another step, I realize that I have made it to the top. As I look out over an incredible view, seeing for miles I marvel at what the Lord has made. It is simply breathtaking. And then, I am startled by a touch, as I open my eyes to find a 30-inch long, 19-pound little girl, with big blue eyes looking up at me, smiling and saying, "Mom?" That is when I realize that I never left the living room sofa.</span></em></strong></div><span style="color: #4c1130;"><br />
</span><br />
<span style="color: purple;"><span style="color: black;">I now realize that my strength comes from my sweet little blue eye girl named LaRae Sianna Lawley</span>.</span><br />
<span style="color: purple;"><br />
</span><br />
Thank you for reading my blog and allowing me to have moments of weakness.Miracles on Madison Streethttp://www.blogger.com/profile/02925095765326144439noreply@blogger.com0tag:blogger.com,1999:blog-4821679802453163512.post-83838530624429370032011-01-17T16:17:00.000-08:002011-01-17T16:17:46.760-08:00Latest on LaRae Recovery at HomeWe are sure glad to have LaRae home. When I say she is amazing I mean it. To see her now two weeks after spinal surgery you would never even know she had it. She runs and plays like before the surgery. <br />
<br />
She is still having the same problems with her legs We won't see any improvements for a while and we might still see her legs getting worse before they get better. We will have to wait and see what happens over the next 3 to 6 months and it could take up to a year.<br />
<br />
She has her follow up appointment for Jan. 26, 2011 with Dr. Campbell her Neurosurgeon. She did see her Pediatrician last Wed. He did another c-diff test. LaRae lost 2lbs so she only weighs 20lbs again. She should gain it back in two to three weeks. LaRae is eating like a horse so I think she will gain it back with no problem.<br />
<br />
She also has an appointment at Shriner's with Dr. Kozin to check out LaRae's arms on Feb 2.<br />
<br />
We are so happy to have our Miracle Baby home and to hear her laughter in home is a wonderful blessing. I want to Thank everyone for their prayer and help during this hard time. We couldn't of done it without all of you. God Bless all of You. Miracles on Madison Streethttp://www.blogger.com/profile/02925095765326144439noreply@blogger.com0tag:blogger.com,1999:blog-4821679802453163512.post-30215813566901508682011-01-10T10:38:00.001-08:002011-01-10T10:38:25.255-08:00LaRae is homeJust to let everyone LaRae come home late last night. Quintin decided we would take our chances at home. She has lots of appts. to make sure she is OK. I will go into details at a later time.<br />
<br />
<br />
<br />
<br />
On the downside I picked up a nasty stomach virus. Sunday night it started and I am dehydrating pretty fast again.Miracles on Madison Streethttp://www.blogger.com/profile/02925095765326144439noreply@blogger.com0tag:blogger.com,1999:blog-4821679802453163512.post-90467961626565583252011-01-08T09:59:00.000-08:002011-01-08T09:59:04.491-08:00More TestsDr. Campbell LaRae's nuero surgeon came and saw her this morning. He orders an abdominal X-Ray and culture her stool to see if her white cells are high. They are checking to see if she has c-diff or any other bad infection in the intestine. <br />
<br />
<br />
Once again she isn't eating or drinking. I have no idea when we will get to go home and if they do let us go home it's also snowing here to add to the problem. <br />
<br />
The missionaries are coming to give her a blessing. I didn't think we need another one but things aren't going good. We really need Heavenly Father to help her now. I am really worry about giving her a blessing. Her room mates father is a minster and I don't need to have a debate about my believes. We will see if they say anything. So prayer that Heavenly father will protect us and help us get threw this hard time. I am trying to stay strong. I can feel my strength is weakening, the tears come, I feel helpless and scare of the unknown. <br />
<br />
On a happier note here are some really cute pictures of LaRae in her wagon that she is always in weather we are cuising the halways or just sitting in her room relaxing watching disney movies she. <br />
<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi8RKIAwPKUG7mUv-VBTDnloa3dEB2vTtYkPsKrCQZA8cKfa8dNulX4cyxKZx6VPI2qRLXkwrYUvB4GRmUC12Ek9ubBwmHsUfBZAFmT-UwRZLa6R-ZvYiaqDVHApbOUwXlIZMms8Fefjy4/s1600/102_2381.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" n4="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi8RKIAwPKUG7mUv-VBTDnloa3dEB2vTtYkPsKrCQZA8cKfa8dNulX4cyxKZx6VPI2qRLXkwrYUvB4GRmUC12Ek9ubBwmHsUfBZAFmT-UwRZLa6R-ZvYiaqDVHApbOUwXlIZMms8Fefjy4/s320/102_2381.JPG" width="320" /></a></div><br />
<div class="separator" style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none; clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhEqI1AnHBWF5Mr5p0t7KLFnlpCXMz_qgfmKkwwaI47vKj5HG9cFjeH7djdVZgVjt4D9lx6n9ohYIfq5gUEAIy6tJoOyF9ZWtC_-H7TmD7eNMfzbqDg8jd__v8soTFHAaE9WzXk_JhvoU4/s1600/102_2382.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" n4="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhEqI1AnHBWF5Mr5p0t7KLFnlpCXMz_qgfmKkwwaI47vKj5HG9cFjeH7djdVZgVjt4D9lx6n9ohYIfq5gUEAIy6tJoOyF9ZWtC_-H7TmD7eNMfzbqDg8jd__v8soTFHAaE9WzXk_JhvoU4/s320/102_2382.JPG" width="320" /></a></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjOMan6Y5pmZFFm9anBWL_RxTf4Z4yAYacrZUTNS3dIY8bW-4ft_mCAQHK6myKTnErCera642XQYmu_OYpMJpcw1HHLMnloKYmVhi1a2jWEgq0Aq3b1Vf-uwkcSBlcscxCRRhK6UCykmdg/s1600/102_2387.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" n4="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjOMan6Y5pmZFFm9anBWL_RxTf4Z4yAYacrZUTNS3dIY8bW-4ft_mCAQHK6myKTnErCera642XQYmu_OYpMJpcw1HHLMnloKYmVhi1a2jWEgq0Aq3b1Vf-uwkcSBlcscxCRRhK6UCykmdg/s320/102_2387.JPG" width="240" /></a></div><div style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none;"><br />
</div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj0vhC9vfLIViLeg73dk2VrVRWPMOLXPL7tCCrWlwjS5FOnLNxvp0jwlToi2H86KxQEf3vGrqT65RFcmb5gmA93ZKMxGEdWCvP36RnU-e7jH0m-1JXV7REnzya2t_phUWOd6xN7G8fhblI/s1600/102_2387.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" n4="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj0vhC9vfLIViLeg73dk2VrVRWPMOLXPL7tCCrWlwjS5FOnLNxvp0jwlToi2H86KxQEf3vGrqT65RFcmb5gmA93ZKMxGEdWCvP36RnU-e7jH0m-1JXV7REnzya2t_phUWOd6xN7G8fhblI/s320/102_2387.JPG" width="240" /></a></div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg64Yfp58O0mCWDfQ0vd7vGq7DQ2aFRhSdV6TstQtfwft-c3L7wIryh4SmbI_xmovvsvPo-gGkLGDKsHfNdsoqt70eIDFJkFco23RvISSHFqMNmW9e4QihrV3yz8me1BPYf3MEPkkMcYIg/s1600/102_2385.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" n4="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg64Yfp58O0mCWDfQ0vd7vGq7DQ2aFRhSdV6TstQtfwft-c3L7wIryh4SmbI_xmovvsvPo-gGkLGDKsHfNdsoqt70eIDFJkFco23RvISSHFqMNmW9e4QihrV3yz8me1BPYf3MEPkkMcYIg/s320/102_2385.JPG" width="240" /></a></div>Miracles on Madison Streethttp://www.blogger.com/profile/02925095765326144439noreply@blogger.com0tag:blogger.com,1999:blog-4821679802453163512.post-53525736340640786092011-01-07T20:24:00.000-08:002011-01-07T20:24:06.506-08:00LaRae painted a ceiling tile for DuPontLaRae painted a ceiling tile for the Hospital it will go in the hallway of the wing she was in 3E. We made a butterfly out of a foor print and flower out of her hand print. She wasn't really happy when I try getting her hand flat. LaRae helped paint the grass and the sun. We had a lot of fun doing it. Here is a finish tile.<br />
<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjb6HJs31UwE6Ipi4C2YFEUDX92_wejMxQDJSkpkKTQqCqFnkcgO1_PyWHEpbKRwyTqTd6z1Ma8H1qHW7pQ8ue6DK_ryFI_a8syM5w37tqUJxIiCiF5TRUdc7hxcvgto7U7tieA9I5YNrA/s1600/102_2384.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" n4="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjb6HJs31UwE6Ipi4C2YFEUDX92_wejMxQDJSkpkKTQqCqFnkcgO1_PyWHEpbKRwyTqTd6z1Ma8H1qHW7pQ8ue6DK_ryFI_a8syM5w37tqUJxIiCiF5TRUdc7hxcvgto7U7tieA9I5YNrA/s320/102_2384.JPG" width="320" /></a></div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEidUbA5Lf6KZMMuxg_jrZ4ILTrxvPZnr0rI1KsYVss6l5wJAdTLJVOiy_bbYrctfqccUnyFOmmGV0tM7rZBsd3SEbvzmWHeLKIW58Uh7-4b3b2opGkwOutkBaet7m1SyjLcvwFtiuYUh7U/s1600/102_2383.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" n4="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEidUbA5Lf6KZMMuxg_jrZ4ILTrxvPZnr0rI1KsYVss6l5wJAdTLJVOiy_bbYrctfqccUnyFOmmGV0tM7rZBsd3SEbvzmWHeLKIW58Uh7-4b3b2opGkwOutkBaet7m1SyjLcvwFtiuYUh7U/s320/102_2383.JPG" width="320" /></a></div>Miracles on Madison Streethttp://www.blogger.com/profile/02925095765326144439noreply@blogger.com0tag:blogger.com,1999:blog-4821679802453163512.post-85787392532403757722011-01-07T20:02:00.000-08:002011-01-07T20:02:44.585-08:00Christmas at the HospitalIt was like Christmas all over again. They had left over gifts from Christmas. LaRae got a stack of toys and books from the hospital.<br />
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj5YW2eOWIxVoI7hBET5HieTJQLugQKTy77nuyTltHnU_CkrcMONlfc_x7O0PZUdpMOIALsSUFUPbbAMQynDUM4-IMoOQrdoEbGhrOtajf18qAS4ezGYoWHBi98OZUUjtGF7jWZpNdTDEw/s1600/102_2379.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" n4="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj5YW2eOWIxVoI7hBET5HieTJQLugQKTy77nuyTltHnU_CkrcMONlfc_x7O0PZUdpMOIALsSUFUPbbAMQynDUM4-IMoOQrdoEbGhrOtajf18qAS4ezGYoWHBi98OZUUjtGF7jWZpNdTDEw/s320/102_2379.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">I got a stick horse</td></tr>
</tbody></table><br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgINi4LJZ7WoS3tuzF9AJHaNWrfS4AJSgDvKBqvPecMDm8zF2POq9HIgMlYeQ19eZMUu4rgRGDXYo9AWHbw4mKzp5815c53p6Y_FPTJqi_PdaAA1jlk4qsWXMOj8ptUz6366SUNjKZU1V4/s1600/102_2378.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" n4="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgINi4LJZ7WoS3tuzF9AJHaNWrfS4AJSgDvKBqvPecMDm8zF2POq9HIgMlYeQ19eZMUu4rgRGDXYo9AWHbw4mKzp5815c53p6Y_FPTJqi_PdaAA1jlk4qsWXMOj8ptUz6366SUNjKZU1V4/s320/102_2378.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">All mine</td></tr>
</tbody></table><br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEilJyn15QLpyORemY7bXLuT_Jim2lU6H4S0o5OlBgJWFCl3z1Dpf6m4OT6KtWoN-R_-MxEJuAZGe86FM9C_6WNGtjk0rL-MBYR-FuBOR9XxSz84N9aR5BRhosSPTBtHX2CamFX8QXgop1o/s1600/102_2376.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" n4="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEilJyn15QLpyORemY7bXLuT_Jim2lU6H4S0o5OlBgJWFCl3z1Dpf6m4OT6KtWoN-R_-MxEJuAZGe86FM9C_6WNGtjk0rL-MBYR-FuBOR9XxSz84N9aR5BRhosSPTBtHX2CamFX8QXgop1o/s320/102_2376.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Woo a really big Barbie</td></tr>
</tbody></table><br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj_3W-63wPzMdk6bcOHTNoOPkpGX13FvohkdxcT3DqFORq6D5g4SP9S_w3kixtCGM9IJ_9M4k8IvCXR1HNRGAZLTkTstWuQmBPpMdELPCHUgKSMEvFmk_cT-OlajcICOyuMZgNj70fBft4/s1600/102_2377.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" n4="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj_3W-63wPzMdk6bcOHTNoOPkpGX13FvohkdxcT3DqFORq6D5g4SP9S_w3kixtCGM9IJ_9M4k8IvCXR1HNRGAZLTkTstWuQmBPpMdELPCHUgKSMEvFmk_cT-OlajcICOyuMZgNj70fBft4/s320/102_2377.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Look at all my loot.</td></tr>
</tbody></table>Miracles on Madison Streethttp://www.blogger.com/profile/02925095765326144439noreply@blogger.com0tag:blogger.com,1999:blog-4821679802453163512.post-53329172793633021622011-01-07T19:52:00.000-08:002011-01-07T19:52:16.077-08:00LaRae is still not going home.LaRae was supposed to be discharge from the hospital tomorrow. Now it looks like we are staying longer. They had to give her an enema to get her to move her bowls. After the nurse did that she started to vomit. In less then an hour she had vomited 5 times and on top of that the enema started to work too. I felt so bad for her. Now everything is undecided to when LaRae can leave and what the doctors will do next. Please keep LaRae in your prayer.Miracles on Madison Streethttp://www.blogger.com/profile/02925095765326144439noreply@blogger.com0tag:blogger.com,1999:blog-4821679802453163512.post-86815871485071128082011-01-06T15:36:00.000-08:002011-01-06T15:36:53.259-08:00LaRea's Hospital updateLaRae is out of bed. She was scared at first. Rennie from Physical Therapy help get her out of bed. She still refused to walk. Rennie wasn't sure if she was scared since it was the first time she was out of bed since surgery or if the IV that is in her foot is causing the pain. Some else might be going on with her legs from the surgery. So now it's another wait in see processes until the doctors can take out the IV.<br />
<br />
We thought she was going to be home by Thursday at the lastest. The doctors are now thinking maybe by Saturday. LaRae for some reason has stopped eating and drinking. Her bowls have slow down to much too. Her GI ordered a Sweat test. We will have those results sometime tomorrow. She is still is in a lot of pain. The doctors keep changing her pain medicine.<br />
<br />
On a good not. She is really funny with the nurses and doctors. She doesn't say Hi to them, but when they leave the room she says bye to them. She has learn a new word "ouch". She shakes her head no every time they come near her. When the tech was taking off the tape from the Sweat test she was saying Thank you. The one nurse taught her how to stick out her tough. Now she stick out her tough at the doctors when they are leaving with the binkie in her mouth. They just laugh at her because they think she is so cute. LaRae has a red wagon while she is here. Because of the incision of her back it is stuff with pillows so I take her rides around the hallways and she spends a lot of time it in the room watching movies. She is going to be spoil before she leaves here.<br />
<br />
I hope we get out of here soon. I miss my bed and sleep.Miracles on Madison Streethttp://www.blogger.com/profile/02925095765326144439noreply@blogger.com0tag:blogger.com,1999:blog-4821679802453163512.post-69320894151734556832011-01-05T09:34:00.000-08:002011-01-05T09:36:05.754-08:00Pictures of LaRae before the Hospital and in her room.<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjtu95uWOBx89M86PyZaOBpwIMLOKJT9g8lVGa5cYM3hLZSARSzl1nFQcvb_dvqnxdFYDtd8_XjNeR1ck50z9fr9ZWkpvD3O-Ik34-A2iQjn5QUNWI13kPFSHdxs1B3HnXc0VTEZ9v98YY/s1600/IMG_0117.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" n4="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjtu95uWOBx89M86PyZaOBpwIMLOKJT9g8lVGa5cYM3hLZSARSzl1nFQcvb_dvqnxdFYDtd8_XjNeR1ck50z9fr9ZWkpvD3O-Ik34-A2iQjn5QUNWI13kPFSHdxs1B3HnXc0VTEZ9v98YY/s320/IMG_0117.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">LaRae playing after breakfast surgery morning.</td></tr>
</tbody></table><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh9yxjLEUxVOyCUJ6PflvBUBnYO4w2TfNKocbSn6GfjW9z5gjownnBOZc7d1AkRC-0yOQeQ9L52HYYeYJCKOt1ZOxpBfNohcP-u5SZyNRja6hXIPDlYDRP79oCY4RBbKE4tY1fAn3vCLaw/s1600/IMG_0125.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" n4="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh9yxjLEUxVOyCUJ6PflvBUBnYO4w2TfNKocbSn6GfjW9z5gjownnBOZc7d1AkRC-0yOQeQ9L52HYYeYJCKOt1ZOxpBfNohcP-u5SZyNRja6hXIPDlYDRP79oCY4RBbKE4tY1fAn3vCLaw/s320/IMG_0125.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">LaRae giving mommy some love Monday morning.</td></tr>
</tbody></table><div style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none;"> </div><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj4O-S94fjhTsgl5zwFkhcuWKpJ8ZpUSB8C2_9MECri_2Im75aLxM-o5XK-h6WBbsBEoZYDaI43u58NfTvRi7eX9kUYbIy0h1uOveFwsuIpIkmLNkm8dc_499tnOF3kF6NVGtr1aLLpNh4/s1600/IMG_0119.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" n4="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj4O-S94fjhTsgl5zwFkhcuWKpJ8ZpUSB8C2_9MECri_2Im75aLxM-o5XK-h6WBbsBEoZYDaI43u58NfTvRi7eX9kUYbIy0h1uOveFwsuIpIkmLNkm8dc_499tnOF3kF6NVGtr1aLLpNh4/s320/IMG_0119.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">LaRae and Daddy in the ship at the Ronald McDonald on Monday morning before Surgery.</td></tr>
</tbody></table><table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh7ceexlRG9LuTjY12cbDxCoC-NC6CnAgMiRJlsoWhjppesD3ybdjPootA_cvoycETifRtzNeNOvaw1ddbboY6ZsywkJKmudrMC981mhk6x4jFhGv-w2qskA7I8uEflQuHv8KWEj_lUPPU/s1600/IMG_0118.JPG" imageanchor="1" style="clear: left; cssfloat: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="320" n4="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh7ceexlRG9LuTjY12cbDxCoC-NC6CnAgMiRJlsoWhjppesD3ybdjPootA_cvoycETifRtzNeNOvaw1ddbboY6ZsywkJKmudrMC981mhk6x4jFhGv-w2qskA7I8uEflQuHv8KWEj_lUPPU/s320/IMG_0118.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">LaRae playing</td></tr>
</tbody></table><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEii30YALib2v3h95AkmyTBIdgCk3nqv7eCyI7ojZV_BWBIZ817hM1ZLJX468uYpfE5KbhMbD4dpSIrrBWzEI9TAn_wcxYsaZj6JNujO3Rmq4rcd5AQHN0Q4rWmGgWZG4r45RjGEoBL3s3E/s1600/IMG_0120.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" n4="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEii30YALib2v3h95AkmyTBIdgCk3nqv7eCyI7ojZV_BWBIZ817hM1ZLJX468uYpfE5KbhMbD4dpSIrrBWzEI9TAn_wcxYsaZj6JNujO3Rmq4rcd5AQHN0Q4rWmGgWZG4r45RjGEoBL3s3E/s320/IMG_0120.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">LaRae giving her daddy some love.</td></tr>
</tbody></table><div style="border-bottom: medium none; border-left: medium none; border-right: medium none; border-top: medium none;"><br />
</div> <br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEimoHi3TVfvcOZMXCLSnYz_Ht1NWRuQ-kwHQtHTK0e4PBLl5ud4hqhgkdzkAIUxF5iut9gkNpxyXoNvskii9IpIY1BuJxS6V7Jm5bOua8sTwaRhGtMGfKA3Y9fl4WTC_0O2gWQMVPxmsVU/s1600/102_2375.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" n4="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEimoHi3TVfvcOZMXCLSnYz_Ht1NWRuQ-kwHQtHTK0e4PBLl5ud4hqhgkdzkAIUxF5iut9gkNpxyXoNvskii9IpIY1BuJxS6V7Jm5bOua8sTwaRhGtMGfKA3Y9fl4WTC_0O2gWQMVPxmsVU/s320/102_2375.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">LaRae Wednesday morning in her bed with all her toys from home.</td></tr>
</tbody></table>Miracles on Madison Streethttp://www.blogger.com/profile/02925095765326144439noreply@blogger.com0tag:blogger.com,1999:blog-4821679802453163512.post-85679083425610777592011-01-04T14:15:00.001-08:002011-01-04T14:15:49.719-08:00LaRae has been move out of the PICULaRae has been moved from the PICU to the regular floor. She should be home by Thursday or Friday. She still has to late flat and still for another 24 hours. Her pain is under controll. The only time we have problems with her staying still is when the doctors and nurses come in and do something to her.<br />
<br />
<br />
We did have to move once already. We had a problem with the our first room. She was roomed with a teenage girl that was having family problems and it wasn't a good situtation. We had LaRae moved since they kept waking LaRae up. Now LaRae is roomed with a little girl that seems to be really sweet and this family is quiet.<br />
<br />
Quintin has headed for home so my mom can go to work tomorrow.Miracles on Madison Streethttp://www.blogger.com/profile/02925095765326144439noreply@blogger.com0tag:blogger.com,1999:blog-4821679802453163512.post-82743074632510996122011-01-04T07:47:00.000-08:002011-01-04T07:47:22.393-08:00LaRae's surgery is done<div style="text-align: center;"><div style="text-align: left;">Sorry it took so long to give anyone any news since yesterday. LaRae is doing good and surgery went fine. We had some problems when she hit the PACU and I haven't had time to update. The Doctors and nursers wanted her to sleep at least a 1 1/2 hour after surgery. Well let me tell you that didn't happen. She was raring to go 10 min after she got to the PACU. I will explain everything that has happen since my last posting at 11:40 am on1/3/2011.</div><div align="left"><br />
</div><div align="left">At 12:45 Dr. Campbell came out aid she did well and the surgery went well. He explained that they release the cord. There is a but coming, he said he didn't not know for sure if it was tethered. He did released the cord any way hoping that the will help with the syrinx.</div><div align="left"><br />
</div><div align="left">LaRae's out come is this.</div><div align="left"><br />
</div><div align="left">1. LaRae will have to have MRI's every 6 months.</div><div align="left">2. The nerve damage in her legs probably is permanent.</div><div align="left">3. They might have to put a permanent shunt in the spine.</div><div align="left"><br />
</div><div align="left">Even with know all of this we are stay positive she is Heavenly Father hands and he knows the out come of all of this. My family, friends and our faith will get us threw this. </div><div align="left"><br />
</div><div align="left">When LaRae come out surgery they decided not to keep her on a vent. They thought she would sleep most of the anesthesia off that didn't happen she woke up 10 minutes after being in the PACU. She was supposed to go right to the PICU. Since there were no available beds yet we had to wait in the PACU. When LaRae woke up she woke up violently. It was not a good thing since she needs to lay flat and still. They had to move her to my lap and I had to keep her no higher the 30 degrees. I had to hold her chest down and Quintin had to keep her from kicking her legs this went on for 3 to 4 hours and I couldn't move at all or she would wake up. </div><div align="left"><br />
</div><div align="left">At 5:30 pm a bed finally became available in the PICU. They changed her pain meds that seems to be working better. She is laying still and sleeping a lot. Things are better and she is doing better. She will be move to a regular room some time today 1/4/2011. That's all I have for now. </div> <br />
<br />
<br />
<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgQSBuN77SA58QmoXHCdX1eW3UNh_qoowjvwluS4BKPo4t1RNELbtHHxNg7U-y7PVaca3KmeHR5ghH-Mz4HeApdqgJAEh-z1BDmjtsmTQYwpp_2Y_zHGPokvocp7uYl5feWeLoInRvAyRU/s1600/102_2373.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" n4="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgQSBuN77SA58QmoXHCdX1eW3UNh_qoowjvwluS4BKPo4t1RNELbtHHxNg7U-y7PVaca3KmeHR5ghH-Mz4HeApdqgJAEh-z1BDmjtsmTQYwpp_2Y_zHGPokvocp7uYl5feWeLoInRvAyRU/s320/102_2373.JPG" width="320" /></a></div><br />
LaRae 20 hours after surgery</div><br />
<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhtXmRc82mqDen9OzCHq2mSisSCVJSji9ugZceE1QMKR4my7CuctuHO-LW4-W95LapWK2wOHUEyczzqXIpVqFE39wUeog9K2Lb2pu0zDDhqwcN7NLsgIuV5GYc6h-wC3bLUJdaz1OpAkm4/s1600/102_2374.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" n4="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhtXmRc82mqDen9OzCHq2mSisSCVJSji9ugZceE1QMKR4my7CuctuHO-LW4-W95LapWK2wOHUEyczzqXIpVqFE39wUeog9K2Lb2pu0zDDhqwcN7NLsgIuV5GYc6h-wC3bLUJdaz1OpAkm4/s320/102_2374.JPG" width="320" /></a></div><div style="text-align: left;">LaRae awake from the nurses messing with her not happy.</div>Miracles on Madison Streethttp://www.blogger.com/profile/02925095765326144439noreply@blogger.com0tag:blogger.com,1999:blog-4821679802453163512.post-16392294627171909292011-01-03T09:23:00.001-08:002011-01-03T09:23:32.832-08:00LaRae's Surgery Updare 11:40amNurse came out and said LaRae is doing OK. They just made the incision. She will be in another 1 hour and 15 mins. The nurse also told us that they are taken her directly to the PICU unless her room isn't ready then she would have to stay in the PACU for a while. The nurse will come back out will one more time with an update. They did have to pre-treat her with steroids and a Neb treatment before surgery because of what happen after the MRI. They don't what to take a chance of aggravating the airway.Miracles on Madison Streethttp://www.blogger.com/profile/02925095765326144439noreply@blogger.com0tag:blogger.com,1999:blog-4821679802453163512.post-38257807426701243662011-01-03T08:43:00.000-08:002011-01-03T08:43:37.804-08:00LaRae surgery news.She is in surgery. LaRae, Quintin and I got blessing last night. I know Heavenly Father is watching over her right now. I am still scared and worried. It is really hard not to be as much as I try not be. I have never seen Quintin worry before and he is even worry this time. She was cute after they gave her the vercet. She got all dopey and silly. I really thought I was going to cry when the surgical team carried her away she smiled and we told her we loved her and said good bye sweetie. Now we wait. Hopefully I can get the pictures to upload later.Miracles on Madison Streethttp://www.blogger.com/profile/02925095765326144439noreply@blogger.com0tag:blogger.com,1999:blog-4821679802453163512.post-66465036515879050052010-12-30T10:09:00.000-08:002010-12-30T14:33:35.776-08:00Pre-Admission TestingAfter 5 hours at DuPont hospital we finally were able to go home. LaRae's first doctors appt. Was with GI, however, her GI doctor was home sick so we saw someone else that didn't have time to review the cart and it really was a waste of time. I have no answer to any of my questions.<br />
<br />
<br />
Then we went to pre-admissions testing and of course there was a really sick kid that didn't have a mask on. I tried to get LaRae to wear one that wasn't happening, so I ask for LaRae to be moved into a room away from them. I think we are safe so far.<br />
<br />
They went over everything. I did find out it looks like they might be removing a disc in her back also. If I understand correctly they have to remove the disc to get to the spinal cord. The are calling it an exploratory surgery with possible disc removal and tethered cord release. She will be in the PCAU for several hours. Then moved to the PICU for at least 24 hours under heavy sedation good chance she will be on a ventilator the whole time. She has to remain still for 24 hours. She will not wake up after surgery until the next morning. Both Quintin and I will be with her most of the time. I will stay with her overnight. He will stay at the Ronald McDonald House or with friends from Church parents house.<br />
<br />
They did have to do blood work. They crossed and typed her blood to make sure they have blood on hand if they did it. She wasn't happy about that. <br />
<br />
They did call us with a surgery time she needs to be at the hospital at 9:45 am Monday morning. <br />
<br />
Please Keep LaRae in your prayers. We sure need them.Miracles on Madison Streethttp://www.blogger.com/profile/02925095765326144439noreply@blogger.com0tag:blogger.com,1999:blog-4821679802453163512.post-7015971153317127682010-12-09T05:03:00.000-08:002010-12-09T05:03:17.769-08:00Complication after her MRIThey decide for safety reasons they needed to intubate LaRae for the MRI. There was a risk she could aspirate. She had a cough before they did this and the chest tube aggravated the airway. When she came home she got really sick that night. She started to run a fever of 102.8, croop cough. congestion, and chest wheezing. I took her to the doctors the next day. We had to put her threw a chest X-ray to make sure nothing was in her chest because she was coughing up stuff. They checked her for strep that was negative. She had croop and bronchitis. I had to do neb treatments and give her steroids. Her doctor didn't what to put her antibiotics just yet because of her just getting over having c-diff. On Friday if she wasn't any better they would call in a scrip. Guess what....they had too. She wasn't any better. A week with no sleep. She's getting better still fussy.<br />
<br />
I'm not sure if she didn't have a low IGA that she would of got this sick from being in the hospital for such a short time. This happens every time she steps into the hospitals with in 24 hours she is sick. I can only can come to one conclusion that her low IGA does affect her immune systems and why she gets so sick when she goes into a place that is full of germs.<br />
<br />
They decide for safety reasons they needed to intubate LaRae for the MRI. There was a risk she could aspirate. She had a cough before they did this and the chest tube aggravated the airway. When she came home she got really sick that night. She started to run a fever of 102.8, croop cough. congestion, and chest wheezing. I took her to the doctors the next day. We had to put her threw a chest X-ray to make sure nothing was in her chest because she was coughing up stuff. They checked her for strep that was negative. She had croop and bronchitis. I had to do neb treatments and give her steroids. Her doctor didn't what to put her antibiotics just yet because of her just getting over having c-diff. On Friday if she wasn't any better they would call in a scrip. Guess what....they had too. She wasn't any better. A week with no sleep. She's getting better still fussy.<br />
<br />
I'm not sure if she didn't have a low IGA that she would of got this sick from being in the hospital for such a short time. This happens every time she steps into the hospitals with in 24 hours she is sick. I can only can come to one conclusion that her low IGA does affect her immune systems and why she gets so sick when she goes into a place that is full of germs.<br />
<br />
<br />
<br />
<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjDM2JYLaI1stSNAD9WFlqzstQt3163mcVT08hx0sVRTldFyV_UGF0sQeZDg7pnx_RyK_I8R4gsnGhumWClIzqm2ZZjWPbK2jVjC3voMrFeV5UQCi00CKKIXnIzW3lNITPXq-0rQad7f1s/s1600/102_2248.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" n4="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjDM2JYLaI1stSNAD9WFlqzstQt3163mcVT08hx0sVRTldFyV_UGF0sQeZDg7pnx_RyK_I8R4gsnGhumWClIzqm2ZZjWPbK2jVjC3voMrFeV5UQCi00CKKIXnIzW3lNITPXq-0rQad7f1s/s320/102_2248.JPG" width="320" /></a></div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiGfoVjgmWslQiAdfk3yfzJTtrLEbjYBqi-f_bSjhI5j3Vxt1U3NgV6VV6vLAL1mVIqA2Gutc_G8BEiBtywflPL6MRCmzq9GPpIW3qDRWtDj9K0BWcD41os-Tx5KiJZ0wY1iJMCWhYN2uk/s1600/102_2249.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" n4="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiGfoVjgmWslQiAdfk3yfzJTtrLEbjYBqi-f_bSjhI5j3Vxt1U3NgV6VV6vLAL1mVIqA2Gutc_G8BEiBtywflPL6MRCmzq9GPpIW3qDRWtDj9K0BWcD41os-Tx5KiJZ0wY1iJMCWhYN2uk/s320/102_2249.JPG" width="320" /></a></div><br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhTdka6DrBPJF9UDkiNf22NTMtJZfXUiXyvg3cboTys7pBfoKPtYp8LNM7aJGR5BL0SXoa34JoefWEABsDuz5pyyK4e132vmuMVQ9dpVQ9vUuDPZxTRIhyNBNansptYTDGaow9RFwf8gfo/s1600/102_2251.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" n4="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhTdka6DrBPJF9UDkiNf22NTMtJZfXUiXyvg3cboTys7pBfoKPtYp8LNM7aJGR5BL0SXoa34JoefWEABsDuz5pyyK4e132vmuMVQ9dpVQ9vUuDPZxTRIhyNBNansptYTDGaow9RFwf8gfo/s320/102_2251.JPG" width="320" /></a></div>Miracles on Madison Streethttp://www.blogger.com/profile/02925095765326144439noreply@blogger.com0tag:blogger.com,1999:blog-4821679802453163512.post-20853121269479799892010-12-09T04:28:00.000-08:002010-12-09T04:28:28.265-08:00LaRae's MRI resultsAs you know LaRae had her MRI on Nov 30th. We saw Dr. Campbell her nurosuergeon right after the MRI. We always see the PA first. He asked if we had any concerns or if there were any changes in LaRae. So I processed to tell him that LaRae is losing use of her left leg and foot. She can't bare weight on it to go to up steps, she drags the toe when she walks and it seems like she does know where to place it either almost like it's in outspace if that makes sense. I told him this has been going on for about 8 weeks now and the symptons are increasing getting worse over time. Just yesterday I had to help her go up the step to get into the house she could even bare enough weight on the left leg to get up at all.<br />
<br />
Dr. Campbell came back in, which seem like an eternity, told me that the syrnix was worse. He had hoped it this was not the case. Said that since she is having symptons they will have to address it there is a but coming. The only problem is it's not going to be an easy fix. They can't drain the fluid because there is still not enough, however, they can't leave it untreated because it could cause nerve damage as the fluid collects. He also said that if the syrnix is getting larger it from another underlining problem. Here's the catch where her syrnix is it's from what is called a tethered cord. They ruled this out last Nov with the first MRI because they could see it. Nov that the fluid is collecting it's what they call a grey area where the cord might be tethered and it doesn't show on the MRI and they can only go by symptons. <br />
<br />
It get complaicated for doctors what to do. So we had to out weigh the risk and our only option was to schedule Larae for Surgery to untethered the cord, hope that is the problem and that the fluid reabsobs into body. It was a very hard decsion for us to make. It was the saves out of all the options we had. <br />
<br />
Her surgery is schedule for Jan 3, 2011 at DuPont Hospital for Children. She will be in the PCAU after surgery for a few hours, then in the PICU for 24 hours and then in a her own room hopefully for at least 3 days. We hope everything goes well. She has a low IGA which is part of her ummun system so ever time she goes in the hospital she comes out sick. So I worry about her being in over long period of time. <br />
<br />
I am very nervous about this up coming surgrery. I am getting her a blessing. I have realized that I need to give this to my Heavenly Father and let him help me threw this. I need to be strong for her and my family. I haven't been able to do that at this point untill yesterday I had to underful sister from my church visit me. They brought us dinner and just coming and seeing me. They took time out their busy schedules to see what I needed I really thought at the sight of them I would lose it and break down and cry. I held it together. It let me know that that I can do this and it might feel like I am going threw this all alone and know close to me understands, however, I have lots of people that love me and are saying lots of prayer for my little girl and my family and that means so much. I could do this without them. Before they came I picked up my scriptures and searched for strength, comfort, hope, faith, miracles, endure and healthing of the sick. I found a scripture that touch me that I would like to share.<br />
<br />
Psalms 18:2 The Lord is my rock, and my fortress, and my deliverer; my God, my strength, in Whom I trust; my buckler, and the horn of my salvation, and my high tower.<br />
<br />
This scripture gave me peace like I haven't had in almost a week. He is what comforts me in my time of need. My faith is what gets me threw. I have seen him works miracles. I finally found peace with LaRae's new medical condition. My Heavenly Father is the only one that could of help me with this. I was so devasated from the news no one could help me. It feels good to be at peace with it. God Bless everyone for your prayers.<br />
<br />
Please keeps LaRae in your prayer we have along road ahead of us. Keeping her health until Jan 3. will be hard. I am thinking about doing a public caring pages for her called amazing LaRaeMiracles on Madison Streethttp://www.blogger.com/profile/02925095765326144439noreply@blogger.com0tag:blogger.com,1999:blog-4821679802453163512.post-80345743319860878412010-11-30T06:44:00.000-08:002010-11-30T06:44:29.275-08:00LaRae's MRILaRae is in now having her MRI done. I am waiting for it to be over. I am very nervous. They decided this time to put a tube in her throat to protect her airway. The risk of her aspirating is still too high. So recovery will be longer and she will go up in the surgical suite. I really hope this gives us the answers we are looking for. We will see Dr. Campbell right after the MRI at 1:00 pm. We won't have to wait long for some news. At least I didn't cry this time when they carried her away. <br />
<br />
I am grateful to have wonderful friends and family, that are so willing to help me out with my three other kids. So, that I can be here and not worry about what is going on at home, and for that I am grateful. <br />
<br />
My faith and love in my Savior is what helps me get threw days like today.Miracles on Madison Streethttp://www.blogger.com/profile/02925095765326144439noreply@blogger.com0tag:blogger.com,1999:blog-4821679802453163512.post-87037624593624531402010-11-12T06:14:00.000-08:002010-11-12T06:14:53.837-08:00Sorry for no news!!!Things have be crazy in the Lawley house. One medical problem after another good news and bad for both LaRae and mom. Sorry to keep everyone in the dark, however when mom is sick nothing gets done and the blog is the last thing that is on the list. All the computer crashed too so we had to buy a new one. I happy to anounce that I am starting a family blog so at this point forward this blog will only be about LaRae's medical journey and anything to do with medical stuff I guess you could say. I will link both blogs at the top of each blog so it's easy to move between the two of them. The one other thing that will make life easier is I have new softwear to help with blogging so I don't have to type so much. So thanks so much for following LaRae's journey. Hope to post more soon.<br />
<br />
She does have a MRI of her spine coming up on Nov. 30 that we are very wottied about. She is having problems with her left side of her spine from the middle of her back to her foot. They are worried that the syrnic his getting bigger. I am like always staying postive. When I look at her she gives no reason not to. She has such a spark in her eye. Until I know more...... Miracles on Madison Streethttp://www.blogger.com/profile/02925095765326144439noreply@blogger.com0