We were able to go to a convention for Arthrogryposis with the kids July 17 & 18. They have one very year. It was great seeing that we are not alone. There are so many kids with this but every kid is affected differently no two are alike. We had a chance to talk to LaRae’s surgeon Dr. Kozin from Shriner’s.We were able to locate a great therapist in the area too. So between Early Intervention and outside therapy we will be doing therapy with LaRae 4 times a week. LaRae’s P/T Marnie from DuPont was there at convention she said that we are going to have to serial cast LaRae’s arms now too. That was something I did not think we were going to do. We are going to do that now that the kids are in school. I will be making weekly visits to DuPont to have LaRae’s cast removed and put back on for about 6 weeks.
Convention was great and was very informational. We meet many great friends. Learn a lot about what is wrong with LaRae. We really were blessed she could have been so much worse. I have some pictures of her panting. This is so not like me to let my kids get dirty. For the people who really know me this was hard for me to do. LaRae is teaching me things that I did not think I could do before.
They were able to go onto a Philadelphia Fire Truck. The boys thought that was the best part besides the indoor pool.
Saturday we also celebrated McKayla’s 8th Birthday. We are still trying to plan a sleep over party for her friends. School has already start and we still haven't had one yet.
I'm trying to update myblog as often as I can. So some of this is from the middle of July so please be patient with me. Things have been crazy here with the kids being home for the summer. They are back in school and I can breath again. Thanks!
