Our Miracle Baby Girl

This is my Miracle she has Arthrogryposis Multiplex Congenita and Amyoplasia Congenita. Due to me being so sick for the last 2 years I wasn't supposed to be able to have any more kids. Well what do doctors know. As my husband explains it, I went from dieing to being pregnant. The scary part is that's really what happened. I beat the odds and surprised all my doctors. I then surprised myself with getting pregnant. She was born with a rare disorder. Only 3,000 babies are born with it each year in the United States. We don't know much about it. She has doctor appt.s at Shriner's Hospital and DuPont Hospital. She has Limited range of motion in her shoulder which rotate inward. Her elbows do not bend. Her wrists are flexed towards the forearm. They say with surgeries and physical therapy she will get better use of her arms. After everything our family has been through in the last 2.5 years. She is a blessing. We love her just the way she is. God gave her to us for a reason. Miracles due happen, you just have to have faith.

LaRae Sianna Lawley's Blessing

LaRae was blessed on Jan. 28th, 2009. We are so blessed to have been given this precious gift from Heavenly Father. I'm so honor she picked me to be her mother. She completes my family. I finally have all my little angles. She is my miracles. She was never to be.

Happy New Year Everyone!

Happy New Year to everyone. Where did the year go. So much has happened this year. Since this is our first time doing this we will fill in everyone. I'm ( meaning Sharon) doing a lot better. Seems that my health is better for the moment. I will take that. The last 2.5 years have been very hard for my family and I. But with prayer and faith we got threw it. We were blessed with a miracles baby girl LaRae Sianna Lawley born 11/11 /08 at 11:08 pm. She is doing good. We will be faced with some medical challenges with her. She has been diagnosed with Arthrogryposis Multiplex Congentia and Amyplasia Congentia. She is unable to bend her arms and wrist and has limited arranged of motion in the shoulders. She has been seen at Children's Hospital in Philadelphia and has an appt. a Shriner's Children's Hospital at Temple in Philie in Feb. We aren't sure if they will be treating her or not. We will have to wait and see. Quintin's work has slow down. Hopefully things will pick-up soon. McKayla got a horse for her birthday from a friend. She loves going riding. Adrian is always on the Wii or on the 4 wheeler or dirt bike. Q Is always outside doing something or playing with legos.