Monday, January 19, 2009
Happy New Year Everyone!
Happy New Year to everyone. Where did the year go. So much has happened this year. Since this is our first time doing this we will fill in everyone. I'm ( meaning Sharon) doing a lot better. Seems that my health is better for the moment. I will take that. The last 2.5 years have been very hard for my family and I. But with prayer and faith we got threw it. We were blessed with a miracles baby girl LaRae Sianna Lawley born 11/11 /08 at 11:08 pm. She is doing good. We will be faced with some medical challenges with her. She has been diagnosed with Arthrogryposis Multiplex Congentia and Amyplasia Congentia. She is unable to bend her arms and wrist and has limited arranged of motion in the shoulders. She has been seen at Children's Hospital in Philadelphia and has an appt. a Shriner's Children's Hospital at Temple in Philie in Feb. We aren't sure if they will be treating her or not. We will have to wait and see. Quintin's work has slow down. Hopefully things will pick-up soon. McKayla got a horse for her birthday from a friend. She loves going riding. Adrian is always on the Wii or on the 4 wheeler or dirt bike. Q Is always outside doing something or playing with legos.
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She is such a beautiful baby girl. My son Owen has AMC as well in all four limbs. He is almost 3 and completely amazing. I think you are on the support boards but feel free to ask questions.
ReplyDeletePeg, mom to Owen, AMCer and producing the AMC Documentary (www.amcdocumentary.org and amcdocumentary@gmail.com)