LaRae's bedtime story

"On the night you were born,

the moon smiled with such wonder

that the stars peeked in to see you

and tonight wind whispered,

"Life will never be the same. "

Because there had never been anyone like you....

ever in the world.

So enchanted with you where the wind and the rain

that they whispered the sound of your wonderful name.

It sailed through the farmland

high on the breeze...

Over the ocean...

And through the trees...

Until everyone heard it

and everyone knew

of the one and only ever you.

Not once had their being such eyes,

such a nose,

such silly, wiggly, wonderful toes.

When the polar bears heard,

they dance until dawn.

From faraway places,

the geese flew home.

The moon stayed up until

morning next day.


And none of the ladybugs flew away.

So whenever you doubt just how special you are

and you wonder who loves you, how much and how far,

listen for geese honking high in the sky.

(They're singing a song to remember you by.)

Or notice that bears asleep at the zoo.

(It's because they've been dancing all night for you!)

Or drift off to sleep to the sound of the wind.

(Listen closely... It's whispering your name again!)

If the moon stays up until morning one day,

or a ladybug lands and decides to stay,

or a little bird sits at your window awhile,

it's because they're all hoping to see you smile...

For never before in story or rhyme

(not even once upon a time)

has the world ever known a you, my friend,

and it never will, not ever again...

Heaven blew every trumpet

and played every horn

on the wonderful, marvelous

night you were born."

by Nancy Tillman                       www.nancytillman.com/books/night/

I got this book so LaRae could hear me read to her while I was in the Hospital. I feel this book was written especially for my miracles baby. I know it wasn't. This book expresses the way I feel about her the night she was born perfectly. So I thought I would share this cute story and of course a picture of her.

LaRae 5 minutes after being born.

LaRae's Shriner's Appointment with Dr. Kozin for Arthrogryposis/Amyoplasis

LaRae

LaRae saw Dr. Kozin yesterday at Shriner’s Hospital for Children’s. It was a good appointment. He said she is doing very well. Her left arm is at 90 degrees and the right is at 0 to 35 degrees. It’s what I would call floppy. He had another word for it however, I don’t remember the terminology. He is not worry about her legs either he really didn’t have a good answer to why. Just that with Arthrogryposis growing does play a big roll with development, we will have to wait and see. I do know that her P/T will like that answer at all.

We don’t need to go back until my health is doing better. He did offer to take LaRae for a while if that would help us out. I’m not sure what Dr. Kozin would have said if I would have taken him up on his offer. It is really nice knowing that he cares that much about LaRae to even say that.

I think he was a little sad that LaRae didn’t crawl up into his lap this time. Since her spine surgery she not as quick to go near doctors I hope over time she gets over her fear. Good thing Dr. Kozin doesn’t have a white doctors’ coat then it would have been all over for him. At the end of the appointment he did coax her up into his lap with toys so I could get this picture.





LaRae and Dr. Kozin one of her favorite doctor's and mom's too. He's Great.