LaRae's medical update.

LaRae saw her physical therapist Rachel last Thursday. This was LaRae's first appointment since her tether cord release in January. Rachel had noticed that the LaRae's left leg is getting worse. So we have decided that LaRae needs to have a second opinion due to how bad the left leg is at this time. We were told that LaRae could get worse before she got better but apparently this is a lot worse than what we should've expected it. Her physical therapist doesn't know if it's a joint problem in the hip or if it's a neurological problem with the brain so we definitely have to have it addressed sooner than later. 

The good thing is LaRae has an appointment with Dr. Kozin of Wednesday, February 2 at Shriners. So I am hoping that we will be able to get in to see the lower extremity doctor and the neurosurgeon that is there so we can figure out why LaRae's legs are not improving.

I'm really hoping that this turns out to be nothing and that LaRae just needs more time to heal. My heart wants to  believed one thing and I want to stay positive and not think the worst all the time.  Then I see her legs I know that something is really wrong and that scares me because I don't want her to go through more surgeries. It really was the hardest thing I had to do was to allow the doctors to take her away and to entrust them with my little girl. To not know if she's going to be okay. Now I feel like we are right back where we started from and I have to trust them again.

So if you could say a prayer for my amazing little girl that she keeps her determination not to let anything get in her way from what she wants to do I would really appreciate.

LaRae on Valentine's Day

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LaRae's Post-Op Appt with Dri Campbell

LaRae finally made it her Post-Op appointment with Dr.Campbell. Quintin had the luxury of taken her to the appointment since I was in the hospital. It was the first time he did it all by himself and I have to say he did an excellent job.

Anyway, Dr.Campbell said "she is doing OK considering nothing has really changed and we won't see any improvements for 3 months if there is any improvements."  We have to just wait and see what her body does. The only things that has us concern is she is falling more for no reason. He just said the same thing, it will take time he hopes. We can now start Physical Therapy again. This will tell us if things are improving or getting worse. I really hope the surgery fix the problem and the fluid in the spine goes away. I guess I am just going to have to be patient.

She goes back to Dr. Campbell in May and he mention another MRI in 3 months. I guess that's where we are with she tethered cord and Syrinx.