Pages

Sunday, January 31, 2010

LaRae trying to fight RSV and Bronchitis. Like Arthrogryposis wasn't enough to deal with.



LaRae sure seems to catch everything. We had to cancel our Nuero surgeon appt on Wed. She was just too sick and they didn't what her coming to the hospital that sick. They were afraid she would get something even worse. We had to reschedule that appt for Feb 23 almost a month away. She has a GI appt on Wednesday the 3rd hopefully she will be feeling better.

She came down with RSV and Bronchitis. It seems that the worse might behind us now. They were really thinking about admitting her. I'm so glad she improve enough that did not happen. Her ped had to put her on strong antibiotic, steroids, and neb treatments every 4 hours. Threw all of this she still smiled and blew kisses. That is her favorite thing to do right now.

She also has gained 2 pounds since December. I was happy that she is was finally growing. She's still not on the growth cart yet , however, 2 lbs is better then none. I do worry a lot about her. She has so many health problems that sometime becomes so overwhelming at times. I am thankful for my supporting husband and friends. I wouldn't make it threw this without there love.

Just another look into my life with a daughter with Arthrogryposis. Staying positive and having a strong testament in Jesus Christ is the only way to deal with all the trails our family goes threw on a daily basis.